An Open Letter to Other Healthy People

Be careful who you judge.  Be careful how you judge.  Tides always turn.

Dear Other Healthy People,

I live with a mixed bag of autoimmune diseases, and have for many decades.  They are what we “spoonies” call “invisible illnesses.”  In other words, most often we look just fine on the outside, but we feel like holy hell most of the time.  Because of this, people like me are misunderstood a lot.  We lose relationships because of it even.  We are thought to be lazy, disingenuous, feigning, or just outright lying about our symptoms and how shitty we feel.  We are thought to “use” our diagnoses to get out of social situations or work and chores. It’s hard to even get physicians and other healthcare personnel to take us seriously, and more often than not, it takes many years to even get a diagnosis because of it.  So the lack of understanding, empathy, knowledge, and just general trust from loved ones and healthcare personnel is not only extremely frustrating, it’s also dangerous.
Please don’t tell me you understand when you clearly do not, and let’s be honest, cannot. If you think it makes you mad when I tell you not to say this, imagine how angry it make ME when YOU say it!  There isn’t much more aggravating than someone who tells me they understand, then turns around and is a perfect example of someone who clearly does not.  Just don’t say it.  If you feel like you need to say something, search your heart first, or just don’t say anything at all.  
If you love someone with an invisible illness, then love them just as they are.  It isn’t going to change.  It isn’t going to go away.  This is what you have.  This is what we have.  We may have good days, and we may be fortunate enough to go even very long periods feeling great!  But don’t be a toxic cloud when we don’t feel good and we aren’t able to accomplish all that we’d like, or maybe even all that we’d promised. We are already tired of feeling guilty about what we have no control over.  Believe me, no one — NO ONE — beats themselves up more about not being able to do all that they want to do more than we do.  NO ONE!  So we surely don’t need you spreading your nasty little comments and attitude around as well.  That serves nothing but your own ego about how much greater you must be, and how angry you obviously are that things are the way they are.  Thanks for absolutely nothing.
Have you ever thought about how hard it is to be a healthy, active, strong person one day, and then not be able to move the next, be in constant pain, and then have that rarely ever change?  In our heads, we are still those healthy, vibrant people — just dying to get out and be who we really are.  It’s a cruel joke.  It’s physically and emotionally painful.  So take your disdainful looks, your snide comments, and your whispers behind our backs, and shove ’em! And now pray that you don’t end up like this, because God knows that many of us have prayed for you to end up just like this so you can know, if even for a day, what this is like — to be stuck in a body that refuses to cooperate, that is at war with itself, that inflicts constant pain and confusion, organ failures, threatened with early demise, and refuses to ever be replenished by any amount of rest and sleep.  I won’t even get into the horrible medications and treatments we must face.  
None of this is to have anyone feel sorry for me or the rest of us.  It’s simply to say, “Get a grip!” to the rest of you.  Either be all in with us, or get the hell out.  Seriously.  This is exactly how I feel.  We have enough to deal with to try to stay above ground and have a smile every day without having to deal with people that don’t even deserve to be in our lives in the first place. So now you can’t say you don’t know.
If you have a relationship with me, the truth is you don’t know what you’re going to get from day to day, and even hour to hour.  I’m sorry, and I mean that.  It’s hard, and I know it.  I also know I’m worth it, and so are the few who have stuck with me.  
Oh… I almost forgot.  We don’t expect you to understand it all.  Just believe us and love us anyway.
Yours with Tenacity,
A Spoony named Debora Lynn

A Smattering Is a Big Measure

I grew up in a culturally diverse neighborhood, and probably not all that surprising, my family is quite diverse as well.  We are multi-cultural, multi-ethnic, multi-religious, multi-generational, multi-political, feminists, gay and lesbian… you name it, we’ve multi’d it!  We share a common public service theme, i.e., teachers, healthcare workers, therapists, social workers, cops, and firefighters.  We love our music — all types, and I can’t think of one of us that won’t cut a rug when a tune plays whether anyone else thinks we look good doing it or not.  Essentially, we have a smattering of just about every socioeconomic group you might think of… just about.  I think that makes us special, and I know it is a blessing.

Today, however, I’m not wanting to talk about how special we are or why.  To be straightforward, we buried my mother-in-law yesterday, and I’m feeling drawn inward by the whole experience. Today I want to express why being special in this way and having this blessing is really two other things: an opportunity and an obligation.  Depending on the day, I may feel stronger about one or the other, but my mind will never change about the importance of either.  People don’t often like the word “obligation,” and I’ll bet a lot of people tuned out when they read that one.  It’s not a bad word — just something to live into, not always up to.  This is the case with a family like mine.  This is where people are missing the boat, so to speak.  My family is special, but we are not unique, and we are becoming less and less unique as time flies by.  That’s why this feels so important to me. My own family’s demographics are much like the rest of our country’s, just on a smaller, easier to view scale — a microcosm.

The opportunity in a family like ours is a rich one, not unlike our total human family. But the opportunity doesn’t exist at all if we refuse to listen to each other. This is true of the human existence overall — no different than my own special family.  If we refuse (I won’t use the word “can’t” here, because it really is a refusal.) to validate each other’s individual life experiences we are truly doomed.  Our family is doomed.  This country is doomed, and you can follow the trail from there.  Because we don’t look the same; because we don’t worship the same; because we have lived in different parts of the country; all these things have given us different experiences — ones that we don’t all share. For some reason those of us who don’t share them feel that those experiences somehow don’t exist or lack validity.  We pick and choose simple arguments to prove our points, rather than just simply listening to our loved one’s experiences.  Isn’t that crazy? I personally find it near insane and completely unloving that we’d rather pick a random article, written by a random unknown person to prove our preconceived notion than to lend our loved ones our ear, much less grant them some validation, or better yet, give them some credence and climb on board.

I posted this the other day after watching some family and some friends do and say some very destructive things, and also out of worry for another whom I think could be selling herself short:

Don’t limit yourself by listening only to those who you know are already in agreement with you, and be mindful of surrounding yourself with limited thinkers.  Growth and learning don’t happen in the dark.  Open your heart and soul to the light of others.

Then in response:

I used to think it was common sense, but not anymore.  I really think it’s a learned skill, and a heart condition that is WILLING to hear another’s experience and validate it, even in the possibility of learning that we might need to admit we need to change our own thinking.  Most people just can’t align with this.  We’d rather stand in our rightness and righteousness than to admit we might be wrong or not understand something fully.  It’s sad.

I realize there is a lot of obligation wrapped up in this post, but I hope that the readers can recognize how much opportunity there is as well, and that they actually go hand-in-hand. There is ALWAYS obligation if you want opportunity.  However, often when we associate obligation with family and close friends it may feel like opening the door to be trampled upon, or like extra work.  That is not at all what I’m suggesting, nor am I suggesting that you do the trampling.  But if you can’t own up to the obligation of who you are in your family, and even bigger, the world, you absolutely will miss out on the opportunity to love and be loved for who you are as well.  You absolutely will miss out on blessings that will undoubtedly enrich your life.  If you can see the differences only as something to immediately dismiss and/or disagree with, you are ultimately selling yourself short, though you may at first be selling the other short.  You will be the one who loses out in the end.  At any time and any place in life when you deny someone their right to just “be” in their existence, to allow them the space to have an expression of how life occurs for them, you are also shutting the door on yourself.  Imagine that it would be like an opportunity to step through a door that takes you on a trip through a place you’ve never seen, but choosing to just shut the door instead.

It’s real comfortable to go through life only with people that already agree with you.  It’s easy to read only things that you already know, or things that sound like what you already say.  It’s even easier to spread posts and articles without drilling down and researching what is being put out there simply because we like what it says.  How does this enrich your life?  Where is the learning?  Where is the discovery?  Where is the growth in this kind of behavior and thinking?  This is actually inaction at its finest, and it’s also sadly the stuff that is not worth hurting people we care about over, yet it happens daily.  We are quick to be indifferent to or minimize someone’s experience when it is something we don’t know, and adamant about standing in our own opinion even in the face of losing someone, even in the face of limiting our own experiences.  We humans will do all this, risk all this, avoid all this —  because we would rather be right than to just listen.

We could change the world, but we refuse to even change our minds.  A smattering is more than you think.  We can only change the world one mind at a time, but we forget we must start with our own.  Give yourself the opportunity of living into something more than what you already know.

A Smattering of My Beloveds

On Feminism

For me, being a feminist means that I not only hold up my sisters and myself to a higher standard, but it also means that in conjunction I hold up my brothers to a higher standard and expectation than from where they were once as well.  Note that I expect more from them than that typical machismo, male-dominant, womanizing, misogynistic bullcrap.  My reason for this is pretty simple.  I’ve learned that with ALL people, I get what I expect.  So, if I don’t expect much, I don’t get much.  If I don’t open the door wide enough to let much in, not much gets in.  So, I expect much.  Capisci?

Before you can think outside your box, you must first…

Listen outside your box.

So often we speak only from within our walls and from what we know to be true inside our own secluded world.  Then we suffocate any ideas that try to penetrate from the outside before we actually consider them.  We assign the new thing (thought, value, movement, etc.) a value from our own cemented thoughts, and then call it false or a lie before simply considering it with a different set of experiences and values.  Just because we don’t share or have never had that same experience, we act as if it isn’t true or it doesn’t hold the same value as our own.  We don’t bother to try it on, to do our best to stand even for a moment in the place of the other, or even get curious enough to ask learning questions.  We run away from learning from it, refuse to look at it, and are quick to kick it out of our box and forget it.  Many times we do our best to convince others to do the same.  Some would call this ignorance, and maybe it is, but I think that’s too simple.  I say it is fear, and essentially an absence of love.

What if our knee-jerk reaction to another’s experience was acceptance instead of rejection?  That’s not to say that we should believe or buy into everything anyone says.  Now that would be ignorance.  But why should we automatically reject anything that is different from what we are used to either – that is different from our preformed assumptions?  Fear causes it to be nearly impossible for us to have new ears with which to listen to someone or something that is different.  We are afraid of change; we are afraid of looking wrong; and we are afraid that if we change our people won’t go with us.  Even when we don’t agree with someone, rather than giving them the honor and the credibility that they deserve for having a different life experience, we ridicule and/or we sometimes bully and terrorize them.  When really, it would be so easy just to recognize them (and quite frankly, less work) as another human being with a different set of life experiences.  That would be love and acceptance – without fear.

Everything in this life is not linear, is not of black and white thinking, is not only what you see with your eyes, is not cut up into perfect increments to be served in a universal box.  If you can’t see outside of your own box, if you can’t even imagine what it must be like in another box, this world is going to keep bouncing off the corners and we’re never going to get a smooth ride on it together.

I invite you, at least for today, to listen instead of thinking about your reply.  I invite you, at least for today, to consider that another’s experiences are just as real and true as your own.  I invite you, at least for today, to be fearless and loving with your listening.

In LOVE,
Debora

Work in Progress


Don’t get drawn in by the negativity.  It’s harder to get out than get in. When you do, simply step out.  We are all constant works in progress.  If you fall or misstep, you don’t have to stay there.  Wage peace.

Namasté.



A Day In the Life of a Sensitive Soul

Sensitive soul
Seized by ugliness
Surrounded by meanness
Hemmed in by damage
I absorb it all down through my soul
My cells weakened by it all
My soul can’t take another hit
I wonder why I am so sensitive
Why I attract damaged souls
Irrationality finds me under every glimmer
Why can’t I be Teflon

My soul craves peace, but it eludes me at every turn
Teases me at every corner
Calls out to me behind every door
Blows by the window
Wafts by my face
Flits about my nose
Taps me on my head
Brushes against me
Before it whisks away, never to stay

Too hurt to reach out anymore
Too tired of being turned upon
Too unsure of what to do next
Too bewildered by misunderstanding
Longing for days that won’t come back
Regretting choices that can’t be turned around
Betrayed by promises never fulfilled
Saddened by bottomless circumstances
Disillusioned by treacherous souls
Weary from forcing smiles
I dream of days of do-overs

It all affects me
Family, friends, health, the news, the world
I am paralyzed today
Unable to move
Laden with the weight of it all
Absorbed by my super soft cells
Like an infinite sponge
Incapable of wringing it away
Disabled by my thoughts

Knowing how some that call me love would see this
Only stumbles me more
Shoves me down further
Smothers me like a sack
At once stirs up fiery anger
And echoing sadness in a mix
That anchors me in my hole
Filled up with my own slippery thoughts
They don’t understand
And see me with eyes that lack empathy
I don’t need sympathy
But I know it’s a rare gem that feels it, too

And now the clock is speeding up
I have but hours to climb up
To fix my face, my home, my meals
To adjust my thoughts, finish my tasks
To find my smile and practice my laugh
Before my time is no longer mine alone
Because the day is more important
Because the few who rely on me mean more
At least that is what I tell myself, but really
Because only sensitive souls are supposed to know

                       by Debora Lynn Garcia



On this Women’s Equality Day….


Dear Facebook,

Thank you for the congratulatory message personalized just for me.  HOWEVER, I’m just curious why your picture shows women of all colors in the picture.  PLEASE, for once, do the RIGHT thing and correct yourself.  This picture needs to be as white as me if you want to be accurate.

Don’t get me wrong, I am for sure THANKFUL for this right, and do realize the sacrifices that were made!  But I am very clear in my heart and soul that I am thankful because ALL women now have the right to vote!  The first women’s suffrage movement purposely excluded black women in many instances.

“Women gained the right to vote in 1920, but Jim Crow racial segregation and disenfranchisement — which was enforced by extreme violence — curtailed Black women’s suffrage.”

It is interesting (not surprising) that if you look up women’s suffrage or women’s right to vote, you will very rarely find that it states anything about black women not receiving that right at the same time. You have to actually specify black women in the search to get the whole story.

And if you are really interested, there is tons of information you can find and learn from!  

https://scontent.fsnc1-1.fna.fbcdn.net/hphotos-xft1/t39.3138-6/p280x280/11891368_386668031543868_1583414589_n.png

It was the Civil Rights Movement in the 1960’s (Civil Rights Act of 1964) that removed the roadblocks for all blacks to vote. The 19th amendment was supposed to include all, but there was so much vigilantism (and worse) and state laws that were passed to prohibit it that it was illegal, not enforced and/or even ignored.

The Lie We Live "We’ve mastered the art of killing, now let’s master the joy of living."

The Sole Problem of the Soul Problem Is a Heart Condition

I am angry today.  Actually, I am pissed!  Admittedly, it is not just today, though.  It has been many days for much of my life about the same issue.  But lately, and especially this week, I am angry to my core.  It is sad to say that it speaks of my very essence in this moment.  I know this, am clear about it, and am working on it.  I am told I am a green chakra, the heart chakra. Perhaps this is why I feel so deeply about what has been going on with race relations in this country.  I am sure it is why I feel deeply .

I agree that guns are not THE problem. Bottom line is that an absence of love is the “soul” root of it. However, guns and gun attitudes are a contributor to the problem. How to solve this, the conundrum. On a related note, I do think if you have actual amorous feelings for your lethal weapon of choice, and/or you think it is actually an ANSWER to what is going on, then there is something wrong in your head. If you read that last statement to mean that I am against guns for self-protection, I suggest you get out of the head I was speaking of and re-read it. Do not bother arguing with me on this because I am not wrong, and there is no way to prove otherwise, so do not send me your manipulated stats or stories to prove something to me. The only thing that will prove is that you are still missing the point.

Oh, and by the way, just because someone chooses not to own a gun does not make them a “pussy,” as a few of you have so eloquently put it! If a person is not comfortable with a lethal weapon, then they should not have one. Shut the hell up with that, seriously. Guns are NOT for everyone… as evidenced by every other day on the news! Here is another thing on that note to shut the hell up about:  it being a liberal agenda.

If you are sick and tired of me being on my soapbox about the gun issue, or about the way people of color are seen and treated, whether friend or family, say goodbye to me now, because I will not sit down and be quiet.

If red-headed, freckled, or blonde and blue-eyed, or people that look like me (white, brunette with brown eyes) were being marginalized — or worse  — were being TARGETED for slaughter (YES, SLAUGHTER!), would you still be sitting quietly? Would you still be rolling your eyes at me if these people being assassinated, murdered, looked like your very own children???  This is the world I have had to bring my children up in, and that my children will have to bring their children up in. I had hoped for so much more! And if you still cannot seem to align your conscience with this, consider that it is the same world you are bringing your white children up in. Hello!  The huge difference is that some of these people have targets on them. Would you feel differently then?  What if it was YOUR sweet little seven year old blonde daughter… your 87 year old grandfather… your favorite red-headed Irish pastor… your young up-and-coming cousin…  the single mom next door…?  See?  THAT difference of reaction is an ABSENCE of love at its core! And I CANNOT tolerate it and neither should you! I’m so SICK of the apathy.  As I stated in a previous post:

Your disinterest in what I have to say, your scoffing at my personhood and my knowledge and feelings, your racial brush-off to me translates that you think that somehow my children are less important to me than your children are to you.  

And I will add to that to be even more clear:   Not only is there a disconnect in that some do not comprehend in real-time how important my children are to me, but the really scary part is that my children’s value is MADE less because they do not look like them, because they are black.  Their lives are not as valued.  (And, yes, literally my children are biracial. No need to attempt to make a point with that here.  Truth is, when my children walk out my door, the world sees a black person.  And even if they were able to see a biracial or multiracial person, they would still marginalize them because of it. Because… not white.

My oldest (“Sweet”) shortly before he got promoted to big brother in 1989.  Then, I had hopef thst the world would be a kinder, more fair place for him.  Still hoping.


The very same people who were up in arms over Sandy Hook or the Colorado movie theater slaughter (rightfully so) are now silent about the Charleston 9 terrorist attack, and it is noticeable. So I do not think it is only the terrorists in these incidents whose heads need to be examined. Further, it is not just a problem in the head, it is a heart condition, a sick soul condition in mankind. I cannot say “in humanity ” because sometimes I feel I can barely sense its existence.

So if you now find yourself annoyed with me over this, I label you as having also a listening problem and incapable of examining yourself and how your very own attitude actually plays a role in this soul sickness.  Another label.  No one likes them.

Yeah, I am BEYOND angry. Fed up. In fact, for once, I cannot even find that single adjective to describe my feelings. What I recognize is I am struggling with anger and do not like it, and that I will no longer participate with others in stifling myself.

I have some work to do.  I hope you recognize what there is for you to do.

Division